Knowing that this is your child's journey, clearly listening to their needs, hopes, and dreams can help you navigate best practices in empowering them to live fully into themselves. Asking gentle clarification questions like, "How can I support you?", "What would you like me to know about your BFRB?", "How can I be your best advocate?" can be a great place to start a conversation. Keep in mind that this is a journey; that means there will be good days and there will be difficult days - but through it all, focus on the person your child is first, not their behaviors. What do they need to feel safe? What do they need to feel supported? What do they need to honor themselves?

As parents, it's not always easy to take a step back and let our children guide us. Asking for help from others on this journey connects you to resources and support. Signing up for TLC's health education and community programs to learn more helps you become the best parent you can be.

For Parents

My child wants to tell their friends about their BFRB. Should I let them?

Your child's journey with BFRBs is very personal. Remember that a BFRB is a medical diagnosis that doesn't define your child. They have so many special gifts beyond their hair pulling, skin picking, nail biting, or cheek biting. Disclosing to anyone should be their decision. If they're at a place where they feel comfortable sharing their medical diagnosis with their friends - trust them, even though you may be afraid their choice to disclose may hurt them. Perhaps they've discovered that their friends have interests in common like music, movies, fashion, art, sports, or more. Trust your child to make a good decision for themselves; and be there to celebrate if things go well or with encouragement if things become challenging.

Offer to role-play with your child how they plan to tell their friends. Make gentle suggestions where needed, coming from a place of love.

Keeping the lines of communication open with your child is important for their overall physical health and emotional well-being. Learning more about BFRBs gives you the opportunity to become your child's best advocate. The TLC website is a good start, along with participating in TLC's health education and community programs.

My child wants to get a haircut. Is there a salon near us familiar with hair pulling disorder?

Going to a salon can be a big emotional step for people with hair pulling. TLC offers a referral directory listing of BFRB-friendly salons. We're working every day to grow the number of salons listed with TLC, so come back regularly to check for updates near you.

Remember that it may take some time to find the right stylist for your child.

It's okay to try several before you decide on the one that works best.

Find a Salon

Are there accommodations for BFRBs that I should request from the school?

If your child is struggling at school with BFRBs consider the types of interventions that work well in other environments. Engage your child in a dialogue about what they think might be helpful, then approach your child's teacher about coming up with a plan together. If your child qualifies for special education services, additional accommodations may be possible through their Individual Education Plan (IEP) or 504 Plan. Additional articles regarding school interventions can be found here.

Should I tell my child's teachers and/or their school administration about the disorder?

When teachers and school staff know about your child's BFRB, it may make for an easier school year for the child, family, and school. However, disclosing your child's BFRB is a very personal decision. Start by talking with your child about their comfort level of sharing their BFRB at school. If they're new to the school, it may take time to build rapport and trust with teachers and school staff. If they're a returning student, ask them if there's a teacher or school staff member who they trust to be their safe person/advocate in case uncomfortable interactions with peers occur during the school day. If your child's BFRB is noticeable, such as bald patches, heavy scarring, etc., consider asking the teacher if additional education can be provided to classmates and their parents about body-focused repetitive behaviors to help break down myths and misperceptions and build inclusion.

Forming a strong school and home partnership sets everyone, most importantly your child, up for a successful school year.

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How do I explain my child's appearance to friends and family?

Many parents find that explaining their child's appearance to close friends and family is essential, since these are people that your child will see often. Start with the facts - define body-focused repetitive behaviors and how they affect your child. Remind your friends and family members that your child's BFRB is a medical diagnosis that doesn't define them, it's only one part of them. People with BFRBs lead full and productive lives. They attend college, hold down employment, get married, and have children. BFRBs are not self-harm and are not a result of trauma. Parents don't cause BFRBs. People with BFRBs are worthy of love and support, just like anyone else.

Share health education resources, like TLC's website, www.bfrb.org. Encourage ongoing conversations with family members and answer questions to help them better understand.

Your journey is not unique, and you are not alone.

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